Now I take brisk walks and run on the treadmill only occasionally. You would never know meeting these celebrities that they had a CHD. After a 6 month ramp up, will the Porcene valve take the stress of the 5 rep sets? Ive been affected by heart disease practically my whole life, she said. In 2006, Adam founded HeartValveSurgery.com to educate and empower patients. Questions currently remain about how long such repairs will last and whether patients might require re-operation at some point in the future. She advised us we should start to consider surgery but would follow up with us again in 3 months. My son is desperate to be able to play sports without any restrictions. This procedure has the particular benefit that no artificial valve (with the disadvantages described above) needs to be used. We all appreciate it. Star Jones. No pulmonary hypertension Aortic dissection, a tear in the wall of the aorta. 5 months ago was diagnosed with severe AR and 5 cm long aneurism (root 3.0 cm, sinusi valsave 4.3cm, ST 3.6cm, ascending aorta 3.6cm) on regular yearly checkout, with no syptoms. Your responses mean a lot to myself and no doubt others on this forum. What should I do ? I found a cardiologist with whom Im quite happy with. Without careful study, I dont know what the true risks will be. It functions as a one-way valve, opening and closing with each heartbeat, which keeps the blood flowing in the correct direction. My Dr. gave me the all clear to go back to my exercise routines. Did you run? At this time, it is not known whether Arnold received the new valve using a surgical aortic valve replacement (SAVR) or atranscatheter aortic valve replacement (TAVR). Im not a nurse or anyone who can help in any real way, she told PEOPLE, fighting back tears. This is amplified when I sit with my feet up (male cross-legged) because of the tingling/numbness in feet. Again, thank you and bless you for taking the time to talk with us here! Im used to long runs up to 12 miles at an average 6 minute per mile pace as well as fast interval and farther training. No operation to replace/repair the aortic valve and yo replace the ascending aorta is minimally invasive. Thats just a marketing gimmick. As I train triathlon I check my heart every year and there is small back flow (the same last 5 years). I hadnt heard about the technique previously. We have made the decision to stop playing high school soccer and will reevaluate in 6 months to determine about Spring team soccer (less intense). During that first month we recommend ample walking as the best form of exercise. Guidelines specifically for athletes come from the Proceedings of the 36th Bethesda Conference in 2005. I see my cardiologist the end of May. The readers here would love to hear back from you as you work through this. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. Needless to say, the diagnosis was quite overwhelming. Unanswered questions include: Can a bioprosthetic valve wear out more quickly than expected? This is thought to occur at a rate of about 0.1% per year in adults. I am a 60 yo female who has been active my whole life. Thank you for nice article. Your sons cardiologist would seem to be in the best position to offer specific advice. Ever since undergoing open heart surgery in 2010 for her surprise diagnosis of heart disease, Jones has worked as a national ambassador for the American . A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. There are several variations of this procedure that are applicable in specific situations. Some cardiologists tell me that I can run up to 130 beats per minute ; others say theyd prefer I do power walking because pressure always rises while running. No LV chamber chamber dialiation, normal LV wall thickness, good LC systolic function, No regional LV wall motion abnormality. I will do whatever I can to make sure my mom is comfortable and has whatever she needs, she said. We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. enlarged LV = 350ml Do you think running 40 minutes five times a week at that level of beats can increase the aorta rate of growth ? Sadly, no crystal ball is available. Is this a normal side effect of the heart condition or not? Medical therapy may be useful to slow or halt the progression of aortic valve disease and aortic enlargement by reducing the blood pressure and the blood pressure across the aortic valve. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. Its really not strenuous, maybe 10 km/h and not more that 10 push ups at once. I would think that moderate would be a good term for 8-12 rep range, pullups (unassisted), and pushups. For example, are there data that shows what happens to aortic diameters once sports have been stopped? 2k erg test. Do we have a choice with him only being 15??? What signs should I look out for? Today, echocardiography (ultrasound) for screening or diagnostic purposes for some other heart problem is the most common way that BAV is detected. Website designed by Gatorworks. Mild degrees of aortic regurgitation are usually well-tolerated and do not produce symptoms. No changes in regurgitation status (aortic regurgitation LVOT 19%); I am a marathoner with BAV and no other cardiac issues. Your sons doctors are undoubtedly experts at pediatric patients. Because it was just a cardiologist, not a sports cardiologist or physiotherapist. Theres no reason to not be CPR certified.. However, randomized, controlled trials have excluded bicuspid aortic valve (BAV), which is the most frequent congenital heart disease occurring in 1% to 2% of the total population and representing at least 25% of patients 80 years of age or older referred for aortic valve replacement. A normal aortic valve looks like the Mercedes logo, a circle broken up by three lines that meet in the middle. Best to continue to work towards identifying cause(s) and getting any needed treatment. For most athletes with only mild enlargement of the aorta and no problems with the aortic valve, there should be no activity restrictions. In March 2019, media outlets hailed two new studies on transcatheter aortic valve replacement (TAVR) as potentially signaling the beginning of the end of open heart surgery for aortic stenosis. I have repeatedly asked each follow up, if continued marathon training is OK. Im always told it is fine with the old adage of listening to your body. CT or MRI may be more accurate. Garth was already familiar with heart diease before her diagnosis because it runs in her family. How long does it take for the homograft to completely heal? In the 2.5 years from surgery, I returned back to riding within the first 3 months and later back to longer, decent training pace rides and racing but feel like I have lost my top end mojo. Robin Williams - Aortic Valve Replacement & Mitral Valve Repair. For patients with bioprosthetic valves after heart valve surgery, the valve itself is not usually affected by weight-lifting activities. Eventually I will need valve replacement. The actress, 44, found out she had a leaky valve in 2002. Well, as it happens, the Cleveland Clinic has been recently rated the top heart hospital in the nation, and the number two hospital overall. I am 6ft 3 . Hi all, thanks for sharing all this interesting info. and my valve is working quite well (mild aortic regurgitation). Is it possible that the valve will get loose? Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three.If untreated, it can lead to blocked blood . Hi Larry, thanks for doing this website, I wish there were more like it. Finally some solid information about exercise and life post AVR, thank you very much for that. Can you please shed some light on this is the sport performance supposed to gradually diminish (seems to go to zero for me) before the operation is needed? I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. Before that, I had never seen a cardiologist ever. My family is pressuring me to quit strenuous cycling but I am thinking that switching to longer rides at lower heart rates would not accelerate valve wear or otherwise be bad for me. I know that there can be complication with Dacron graft or even aorta aneurysm building up but Ill stay on positive side since I have no tissue disorder and its highly unlikely that with properly working aortic valve I would develop another one in that short period of time. Historically, a heart murmur was the most common reason affected individuals were identified. What should i do? I appreciate your input. Most patients spend about a week in the hospital after operation and then are able to go home. I would just like to share my experience of having a Aortic Valve replacement. An echocardiogram last June revealed a function BAV. The recovery from heart surgery can be hard to predict for any given patient, but we know that young otherwise healthy patients tend to do well. Rather than just sit there and do nothing about how much I missed [my mother], I put all of that pain, sorrow and longing for my mother into helping educate and make people aware. They may also disrupt the normal flow of blood through the heart. We were to see them in 3 months. Dear Dr Creswell you seem to be such a kind cardiac surgeon to make yourself available in answering questions. I have been checked by echo/CT every year for the last 7 years to monitor the progress of my valve regergitation and aortic aneurism. He was very talented at football. If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. The doc states that basketball is a contact sport in her medical books and we would need to consult with another doctor to possibly get approval. To me, cardiologists are not sports people and air on being absolutely over cautious. Any words you have for us would be greatly appreciated. Bicuspid aortic valve (BAV) disease does not usually cause symptoms. Im obviously quite anxious that Ill drop death! The doctor said it wasnt serious, but that I should keep watch on it every year. Advances in treatment have allowed many babies with known congenital heart disease to survive well into adulthoodand many people who have congenital heart disease go on to live long, productive lives. After his procedure, Arnold posted the picture above with the following statement, "Thanks to the team at Cleveland Clinic, I have a new aortic valve to go along with my new pulmonary valve from my last surgery. Thanks for my previous response a few weeks ago. I would prefer not to stop. Im not surprised that youve received a conservative recommendation about exercise. Today at my hospital, we do most 1st time aortic valve replacements for aortic stenosis (narrowing) this way and have started using TAVR for patients with previous AVR using tissue valves who need re-replacement. I am a 55 years old male and have BAV. A 2019 report suggests that bicuspid aortic valve disease is the most common congenital heart valve problem, affecting between 0.5 and 2 percent of the general population. I understand that we are only beginning to learn about the use of ARBs in patients who DO NOT have connective tissue disorders like Marfans syndrome. All rights reserved. Thank you for your ideas and I apologize for my gramma errors (English is not my first language). New guidelines from the American College of Cardiology (ACC) were published just this week. However, some people are born with an aortic valve with only two leaflets, known as a bicuspid aortic valve. It is quite frustrating, Im running with some guys that have a hard time believing that I run a marathon. Also I seemed to get quite sweaty the following hours after a hard training session. My resting HR is 60-70 BP 110-70, according to doctors have no tissue problems, never had hypertension and was told that I was born with weak threskupid valve. I was just curious if there any way to know if my valve is affecting my times at all? Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. Thank you! Since Im not close to good medical care, are their specific things that I will start to notice if my heart valve is causing a problem? What is a TAVR? She was originally under the impression she felt the way she did simply because she was exhausted. He is football player and he has training 5 times per week (for about 1,5 hours each). Even if its one person I help. Me, i`m nearly 43, male and have BAV. Our only tool to keep track of aortic enlargement is repeated measurements with CT or echo. First, youre not alone! Finally, athletes are not spared. Hi Larry He left it pretty vague. Although bicuspid . For his second operation, Arnold Schwarzenegger, who was 70 years old at the time of this operation, had a pulmonary valve replacement procedure performed at Cedars-Sinai Medical Center in Los Angeles, California. With so many similar stories, do you know why there is not more statistical data or studies done with regards to sports and BAV and changes in aortic diameter? Its now 8 months after surgery and Im pretty much back in my every day life, was even granted to attend my pilot medical tests which are due in 2 weeks. Keyhole just refers to the type of incision used for conventional valve replacement like you had. In January 2021, she underwent open heart surgery to install an aortic valve. The idea of somehow restricting the HR may be attractive as a means of curtailing strenuous activity. The guidelines do not address the frequency of surveillance for individuals with BAV and no enlargement of the aorta. Is that far fetched? Is that so, or can it be measured by the echocardiogram as well? Perhaps the doctor could contact the specialist and request an earlier appointment, if that made sense. I am big for my age . Thank you for your time Dr.! Anyway, it has slowed to 1 mm per year, and, via email, Dr. Dietz has suggested we may consider a switch to 300 mg Libersartan? She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. It sounds like youre off to a good start with your recovery. Thank you for your assistance in this matter. For healthy individuals who have BAV with no other heart or aortic problems, follow-up imaging with echocardiogram and/or CT could probably be undertaken annually, or perhaps less often once stability is ensured. While i appreciate you are not my cardiologist and we`ve never met is there anything generic out there that i can look at to gain an idea. The congenital bicuspid aortic valve (BAV) condition is a valvulo-aortopathy with substantial heterogeneity in its clinical expressions, associated disorders, complications, and prognosis. what recommend me? I cant wait to be back, completely rested with my heart recharged, my passion for the work ahead purposeful and my joy at lifes pleasures high," the statement continued. Sounds like youre on the right track with your upcoming visit with a specialist. It sort of flutters open and shut. The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . Apologies for my slow reply. The problem is I have developed an aneurysm on my ascending aorta of 44mm. So I saw an incredible surgeon and we are going for the Ross Procedure in Feb. Now that we know the type of surgery does this improve my chances or one day returning the CrossFit addicted life I miss? 4.2cm dilated aortic root It is very difficult to find information regarding the athlete and BAV. Now, fully healed thanks to two stents in her arteries, Lucci is spreading the word. Its a hard thing to describe to my cardiologist that my legs and HR are not cooperating when the pace picks up. The BAV is monitored annually, the doctor told me that Im currently in the grey zone but stable since I started the monitoring. I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events. Celebrities With Heart Disease - Celebrity Heart Health Survivors. No stenosis, no calcification. But Ill check it as soon as possible. Aortic valve repair and aortic valve replacement are done to treat aortic valve disease. As I mentioned in previous comment my recovery is going great. I dont know why this formed as I have had the problem valve replaced many years ago. A bicuspid aortic valve only has two of these leaflets. I wouldnt be happy just running I want to be the best that I can be at it. One doctor to told me just to control it and train as I like but the other one said that with those hearts parameters I will have only 1-2% to have operation in the future but if I will continue to do triathlon for sure I will have to have one. In your experience, can patients with BAV go a lifetime without having AVR? The doc says the big risk is due to the blood thinners. Every 6 months it is getting larger. This is an area where second opinions may be helpful in sorting out whats safe. I believe that many Cardiologist are not as experienced regarding how to advise high-performing athletes (even older ones like us). I have: When you start seeing changes with regurgitation does it progress quickly? Nwankwo Kanu (@papilokanu), the Olympic Gold Medalist (Soccer) suffered from Aortic Valve Defect. And, if so, how did things go? Thank you for your time. Monica Lewinsky: 25 Randoms on the 25th Anniversary of the Bill Clinton Calamity. Practice Essentials. The procedure was performed at the Cleveland Clinic. I am also in grey zone waiting for surgery. This award-winning website has helped over 10 million people fight heart valve disease. His cardiologist said he cant play. The GOPs failure to get the 118th Congress going shows how the performative nature of todays Trumpified party is making it incapable of governing. "I had to make lifestyle and diet changes, she said. Please refer to this article if not: https://academic.oup.com/ejcts/article/50/3/400/2197426. While I do expect to have a replacement done later in life, the repair was the best decision I could have made. If 5% of them dissect, this means 313,914 people. Only your cardiologist and heart surgeon will be in a position to make those considerations. Look forward to your reply and thanks for your time. Related posts: I dont doubt there is variability in recovery among athletes who have operation for AVR and aortic replacement. Athletes with BAV and enlargement of the aorta to greater than 4.5 cm can participate safely only in low intensity sports (eg, golf, bowling, billiards). I found myself in emergency surgery 12 months ago with 50% leakage, an enlarged heart and an ejection fraction of 30. No other issues. diagnosed wid BAV AND AS WITH AR I will keep you posted. It's the most common type of congenital heart disease (heart defect that's present at birth) and often goes unnoticed until later in life. Im 39 also diagnosed with BAV when I was 31. My resting pulse is 55 and BP 115/82. We dont know what to do. Thanks for sharing the article about the PEARS technique. Its always good that investigators are looking for new solutions to old problems. In the simplest terms, a bicuspid aortic valve can be a serious heart valve disorder in which the valve only has two leaflets, or flaps, that control blood flow through the heart. "Were saying to put the focus back on you and make a date with your heart.". Have completed an excercise stress test and signed off as ok on reaching level 13. Thank you very much for your thoughtful response. Would this have any affect on any of the results of the tests I have done (Echo, EKG, Chest Xray)? The issues of when, how, what sports are safe, etc. Thanks for the very insightful post, and for taking the time to reply to everyone here. If I ever need surgery to replace my root , I understand that there is an element of complexity for such surgery, but after surgery, is life expectancy for individuals assumed to be shortened at all ? Thank you very much for the answer! I have an OnX mechanical valve. A bicuspid aortic valve is a common cardiovascular condition, affecting about 1% of the general population. Ive not found any programs for evaluating repaired athletes unless something exist with a physiologist research lab. Hes a 30-year-old 8th grade science teacher, a cyclist and outdoorsman, who is chronicling his story with BAVfrom diagnosis, to evaluation, to preparations for upcoming valve replacement surgery. This would be a major operation.and would certainly be invasive regardless of the particulars. Thanks for sharing your sons story with BAV. Given that risk, the current American guidelines recommend screening those children with echocardiogram to identify affected children. New guidelines from 2015 are in accord with your doctors recommendations about vigorous exercise as well as periodic imaging to measure the aorta. Im not aware of studies explicitly about athletes after Ross procedure for BAV. After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. Bicuspid aortic valve (BAV) disease is the most common congenital heart defect, as it affects 1.3% of the adult general population . I was shocked. Yes, there are certainly patients with BAV who never need operation. I am an amateur runner, I do not participate in competitions. I have completed two marathons. Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. I am 51 and leaning towards a tissue valve because of my activities and that I am a firefighter. This international evidence-based nomenclature and classification consensus document is intended for universal use by clinicians, imaging specialists . Very helpful. How severe are the problems? My question is if my weight&lack of training or my BAV is the cause of difficulty in running. Yoga is not included in the classification of sports that is commonly used, but I suspect that yoga would have low to moderate static and dynamic components. when I discussed this with my Dr. he reassured me that its not my heart causing it. I first wrote about BAV in a short post here at the blog back in 2009.

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